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I would like to dedicate this book to my Mother Wilma Richardson and my family and friends, who have done everything that they could to try to help me live and struggle with epilepsy. The reason why I am writing this is not only for me, but for other children too. With the combination of epilepsy, medication and ignorance of this neurological disorder I feel it is very important to somehow prepare children to be strong, and to be confident despite this detestable neurological disorder. Epileptic children need to know why this is happening to them or they too will feel isolated from society. I can only remember bits and pieces of my memory as a child, but I have always felt like this scared little child on the inside asking “Mommy, why do I fall down”?
I fell down under an apple tree and I do not know why.
When I woke up, my Mommy was asking, “Are you ok”?
My head hurts and my eyes are blurry.
Mommy what happened?
Mommy why do I fall down?
I was so tired and I slept almost all day.
My Mommy took me to the doctor and they gave me a shot.
The doctor asked me, “are you ok” I just said I “I don’t remember” and I do not know what time it was when I fell down.
My Mommy looked scared and I did not know why.
Mommy just said I was special and that is why.
The doctor asked me what was my name? And what day it was.
So they doctor took a flash light and looked into my eyes, and the doctor looked in ears.
Mommy said, what can we do doctor to keep her from falling and shaking about?
The doctor gave me medicine to help me from falling down.
When I awoke up the next day to play.
My friend Sue Ellen would not come out to play with me.
She was scared of me and then she would cry.
Mommy why are my friends scared of me?
Why do some people call me possessed?
Why do I stutter, and forget where I put my dress.
My Mommy is good to me and she lets me know that I am loved.
She told me that strangers do not know how special I am.
She said my heart was so big and that some people cannot understand.
How can one contain that much sadness and love in their hearts.
Only people like me Mom, for I have been through this a lot.
My Mother could make me feel special and helped me smile for a little while.
But, there was always this little voice inside me that made me feel different.
Mommy why do I fall down?
She would just say, maybe it happened when you were born. And, my grandma would say I fell off the bed. It can pass down in families, but I was the only one who would shake and fall down. The doctors call this epilepsy and It has been aroud for a very long time.
Many years have passed me by and I still wonder why I fall down.
My Mommy took me the doctors a lot, and one doctor said that when my brain would get excited
When my nerve signals went to fast, this would cause me to fall down and shake.
It is like lightening coming out of the sky, but the lightening was on the inside of me.
My brain would signals and this electricity would go through my body and cause me to fall down
And shake.
I did not feel nothing when I would fall down.
My mind was black with no pain and no pictures.
I had no pain and no sense of anything until I woke up.
My mind was just dark.
Sometimes I have weird dreams too.
Mommy why do I fall down?
Melody everybody falls down and has weird dreams too.
We also lose friends and we feel different things too.
In some countries you are very special and can sense and feel things that others may not be able
too.
My Mommy keeps my medicine in her purse, and she takes me to the doctors all the time to get
shots.
I know I can plant flowers and vegetables too.
I just may not be able to drive a car or swim In water by myself.
Most everything else I can do.
But, like you we will always feel different no matter what we do.
My Mommy says to me that my brain sends signals to my hands, arms and legs.
These signals controls everything that my body can do.
Sometimes I can do several things at a time, and I get a head of a my self and when that happens
I can fall down and start shaking.
My Mommy always taught me to take care of myself, and to get enough sleep and food that is good for me and not over work myself.
I get tired really easy and I have to get enough sleep. If I do this I may not fall down that much.
Sometimes someone will talk to me and I will try and say something and I can not say it. I know that I do this, I just can not stop it. Sometimes people will talk to me and I can not answer them back. It is like I am frozen. Until after it is over I get scared as I see people come after me. They are usually firemen or ambualance people trying to help me. It is just scary to come to understand how I got from one time to another time and I was not awake.
This is call an aura because, it feels like a feeling and it happens before I fall down. Everybody is a little different, they are never all the same. Sometimes, I can smell a weird smell and I will get scared.
I still run and play like the other kids do
And I enjoy chocolate candy and kool aid too.
I am like everybody else, but sometimes I fall down.
If you ever get scared or feel lonely and blue just ask your Mommy or Daddy why you fall down.
Your Mommy and Daddy love you.
Melody Jett
Suffered from epilespy since childhood
Date of birth May 11 1962
As you can see I look around to be five years old. I am 47 years old now.
Saturday, January 02, 2010
I would like to dedicate this book to my Mother Wilma Richardson and my family and friends, who have done everything that they could to try to help me live and struggle with epilepsy. The reason why I am writing this is not only for me, but for other children too. With the combination of epilepsy, medication and ignorance of this neurological disorder I feel it is very important to somehow prepare children to be strong, and to be confident despite this detestable neurological disorder. Epileptic children need to know why this is happening to them or they too will feel isolated from society. I can only remember bits and pieces of my memory as a child, but I have always felt like this scared little child on the inside asking “Mommy, why do I fall down”?
I fell down under an apple tree and I do not know why.
When I woke up, my Mommy was asking, “Are you ok”?
My head hurts and my eyes are blurry.
Mommy what happened?
Mommy why do I fall down?
I was so tired and I slept almost all day.
My Mommy took me to the doctor and they gave me a shot.
The doctor asked me, “are you ok” I just said I “I don’t remember” and I do not know what time it was when I fell down.
My Mommy looked scared and I did not know why.
Mommy just said I was special and that is why.
The doctor asked me what was my name? And what day it was.
So they doctor took a flash light and looked into my eyes, and the doctor looked in ears.
Mommy said, what can we do doctor to keep her from falling and shaking about?
The doctor gave me medicine to help me from falling down.
When I awoke up the next day to play.
My friend Sue Ellen would not come out to play with me.
She was scared of me and then she would cry.
Mommy why are my friends scared of me?
Why do some people call me possessed?
Why do I stutter, and forget where I put my dress.
My Mommy is good to me and she lets me know that I am loved.
She told me that strangers do not know how special I am.
She said my heart was so big and that some people cannot understand.
How can one contain that much sadness and love in their hearts.
Only people like me Mom, for I have been through this a lot.
My Mother could make me feel special and helped me smile for a little while.
But, there was always this little voice inside me that made me feel different.
Mommy why do I fall down?
She would just say, maybe it happened when you were born. And, my grandma would say I fell off the bed. It can pass down in families, but I was the only one who would shake and fall down. The doctors call this epilepsy and It has been aroud for a very long time.
Many years have passed me by and I still wonder why I fall down.
My Mommy took me the doctors a lot, and one doctor said that when my brain would get excited
When my nerve signals went to fast, this would cause me to fall down and shake.
It is like lightening coming out of the sky, but the lightening was on the inside of me.
My brain would signals and this electricity would go through my body and cause me to fall down
And shake.
I did not feel nothing when I would fall down.
My mind was black with no pain and no pictures.
I had no pain and no sense of anything until I woke up.
My mind was just dark.
Sometimes I have weird dreams too.
Mommy why do I fall down?
Melody everybody falls down and has weird dreams too.
We also lose friends and we feel different things too.
In some countries you are very special and can sense and feel things that others may not be able
too.
My Mommy keeps my medicine in her purse, and she takes me to the doctors all the time to get
shots.
I know I can plant flowers and vegetables too.
I just may not be able to drive a car or swim In water by myself.
Most everything else I can do.
But, like you we will always feel different no matter what we do.
My Mommy says to me that my brain sends signals to my hands, arms and legs.
These signals controls everything that my body can do.
Sometimes I can do several things at a time, and I get a head of a my self and when that happens
I can fall down and start shaking.
My Mommy always taught me to take care of myself, and to get enough sleep and food that is good for me and not over work myself.
I get tired really easy and I have to get enough sleep. If I do this I may not fall down that much.
Sometimes someone will talk to me and I will try and say something and I can not say it. I know that I do this, I just can not stop it. Sometimes people will talk to me and I can not answer them back. It is like I am frozen. Until after it is over I get scared as I see people come after me. They are usually firemen or ambualance people trying to help me. It is just scary to come to understand how I got from one time to another time and I was not awake.
This is call an aura because, it feels like a feeling and it happens before I fall down. Everybody is a little different, they are never all the same. Sometimes, I can smell a weird smell and I will get scared.
I still run and play like the other kids do
And I enjoy chocolate candy and kool aid too.
I am like everybody else, but sometimes I fall down.
If you ever get scared or feel lonely and blue just ask your Mommy or Daddy why you fall down.
Your Mommy and Daddy love you.
Melody Jett
Suffered from epilespy since childhood
Date of birth May 11 1962
As you can see I look around to be five years old. I am 47 years old now.
Saturday, January 02, 2010
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